tag:blogger.com,1999:blog-3930620257842720202.post8825472323279178829..comments2023-08-06T11:41:34.081-04:00Comments on We Could Not Ask for More: Having a bad day?Aimeehttp://www.blogger.com/profile/06361708855458119028noreply@blogger.comBlogger11125tag:blogger.com,1999:blog-3930620257842720202.post-45118527837190994192008-06-15T22:00:00.000-04:002008-06-15T22:00:00.000-04:00Oh, Aimee, how wonderful! That really warms my hea...Oh, Aimee, how wonderful! That really warms my heart to see!Kimhttps://www.blogger.com/profile/00867733939934906090noreply@blogger.comtag:blogger.com,1999:blog-3930620257842720202.post-55851901008953877052008-06-14T18:27:00.000-04:002008-06-14T18:27:00.000-04:00Have you considered vigabatrin? Its a miracle drug...Have you considered vigabatrin? Its a miracle drug for alot of babies out there (just not for my Kasey). Steroids are so tough to deal with. Kasey did acth once and recently had to go back on them for ITP.Once Kasey turns 2 depakote will be an option Hes been on all the same meds and phenobarb too at first.We went to UCLA for a surgery eval (We live in Idaho)and that didnt go very well!Kate Smithhttps://www.blogger.com/profile/04075035421573055137noreply@blogger.comtag:blogger.com,1999:blog-3930620257842720202.post-27329218325900742012008-06-13T21:49:00.000-04:002008-06-13T21:49:00.000-04:00Kate - No worries! :)We started with ACTH (2 round...Kate - No worries! :)<BR/>We started with ACTH (2 rounds of that), then moved to Topomax, and now Topomax at a lower dose and Keppra.Aimeehttps://www.blogger.com/profile/06361708855458119028noreply@blogger.comtag:blogger.com,1999:blog-3930620257842720202.post-1647542581203609382008-06-12T00:21:00.000-04:002008-06-12T00:21:00.000-04:00Sorry I reread my comment and didn't like the way ...Sorry I reread my comment and didn't like the way I typed a few words and don't want to offend anybody My baby is a sweetheart alllllll the time. With what he has to go through -clusters of seizures all day and globally delayed he is my pumpkin and I'm so proud of him and what he can do and will do in the future! I'm lucky to have him! I hope your daughter is doing good!Kate Smithhttps://www.blogger.com/profile/04075035421573055137noreply@blogger.comtag:blogger.com,1999:blog-3930620257842720202.post-31693365904607412972008-06-11T23:59:00.000-04:002008-06-11T23:59:00.000-04:00That is so sweet to see! My 20 month old son has ...That is so sweet to see! My 20 month old son has tuberous sclerosis and we've been through infantile spasms it was very tough!He now has different types of seizures going on that are not controlled with meds. What meds have you tried on your daughter? I love my boy and have accepted his condition and all that comes with it!! We have good and bad days but most of the time he's such a happy sweetheart! Your children are beautiful!!<BR/> Take CareKate Smithhttps://www.blogger.com/profile/04075035421573055137noreply@blogger.comtag:blogger.com,1999:blog-3930620257842720202.post-43883744058821161562008-06-11T14:06:00.000-04:002008-06-11T14:06:00.000-04:00That is so precious! You can't help but smile bac...That is so precious! You can't help but smile back! Beautiful smile Emily! :)Heatherhttps://www.blogger.com/profile/04388859774740664525noreply@blogger.comtag:blogger.com,1999:blog-3930620257842720202.post-48280388978769122922008-06-11T13:41:00.000-04:002008-06-11T13:41:00.000-04:00That sure put a smile on my face.She is precious!J...That sure put a smile on my face.<BR/>She is precious!<BR/>JobieAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3930620257842720202.post-72427592699586151362008-06-11T12:21:00.000-04:002008-06-11T12:21:00.000-04:00So beautiful!!! What an adorable smile, Emily! W...So beautiful!!! What an adorable smile, Emily! WE LOVE YOU!!Nicolehttps://www.blogger.com/profile/07516222259598033009noreply@blogger.comtag:blogger.com,1999:blog-3930620257842720202.post-15181174695345851332008-06-09T23:55:00.000-04:002008-06-09T23:55:00.000-04:00That made my day!!! Yay Emily! Her smile is prec...That made my day!!! Yay Emily! Her smile is precious and priceless, as is she!Lindsey: Mama of Andrew, Adam, and Allyhttps://www.blogger.com/profile/04825711549429827804noreply@blogger.comtag:blogger.com,1999:blog-3930620257842720202.post-22695626059476155132008-06-09T20:11:00.000-04:002008-06-09T20:11:00.000-04:00so, so sweet! her smile is just beautiful!so, so sweet! her smile is just beautiful!Rachael Schirano \\ Rachael Schirano Photographyhttps://www.blogger.com/profile/01807990850570260880noreply@blogger.comtag:blogger.com,1999:blog-3930620257842720202.post-44568504210629120242008-06-09T15:28:00.000-04:002008-06-09T15:28:00.000-04:00Beautiful!! Dad and I almost cried.Love, MomBeautiful!! Dad and I almost cried.<BR/><BR/>Love, MomAnonymousnoreply@blogger.com