Biscuit Finds a New Home (another guest post)

As we've endured so much this past year, the decision to be made was not an easy one, but we realized it was time to seek out a better home for our buddy, Biscuit. Man's best friend, indeed — Biscuit has been with Aimee and I for over five years and has been a wonderful companion and playmate ever since we brought him home.

He has never hurt anyone or done anything bad other than occasional stolen banana, cheese stick, or roll from an unsuspecting and careless toddler. He gets upset when he isn't near us and is often relegated to the den, the basement, or outside due to the continued special attention required for three infants and a four-year-old (who can find enough trouble without an accomplice). Additionally, Carter has skin reactions when crawling on the floor or touching Biscuit.

Biscuit loves to chase tennis balls and Frisbees, which, when left alone with him get mangled into a torn up mess, but we were always willing to go the extra mile with him and spoiled him like he was one of the family.

The good news is we were able to find a perfect family to adopt our good buddy, provided he can get along with their cats(crossing my fingers). We decided we'd manage until we we could find not just a good home, but a better home for him than our own; which meant a requirement of either children or other pets and a fenced-in yard. Brandi and Chuck have both and I sure hope Biscuit realizes that he couldn't be luckier.

Thanks guys- Take good care of our buddy.

Happy Mother's Day!!!!

Me and my Mom (December 2002 - before I became a Mom)

I have been thinking over the past week about how special motherhood is and how extraordinary my journey to and through motherhood has been. So, I wanted to take time to honor special women in my life who are mothers, soon-to-be mothers, and just awesome women!

First, my mom, Wendy. I love you Mom and I want you to know how much your love and guidance has helped to make me the kind of woman and mother I am today and for that I am so grateful. Your faithful support through my life, and especially during the last 7 years, means the world to me, and I just can't thank you enough for all you have done and all you do. You're too far away for a real one, so consider yourself hugged!!

*************

I need to remember some Moms who we have lost, but still hold so dear in our hearts;

Judy (Gee-off's mom), Nana (my mom's mom), and Meme (my Dad's mom).

Judy, I'm so sad you can't be with us for Mothers Day and everyday. We miss you terribly, but I just have to tell the world what an awesome lady you were - the kind of mother-in-law every girl wished they could have! You raised one amazing son (okay 3 amazing sons) and I'm so lucky to have him and to have known you. Thank you!

Nanny and Meme - Happy Mother's Day in heaven!!! I love you and miss you both so much!!!

*************

To my big sis Nicole - a brand new mommy to my niece Sierra. Sierra is one lucky baby to have you for a mommy!! I can't wait to see you in June. Soon enough I'll be singing "A whole New World" outside your window!!! :)

To Joanne (Grandmom) - We just can't thank you enough for being such an amazing support for us since the triplets have come home. What would we do without you?

To my dear friends Erin (mommy to Peyton and Tierney), Michelle (mommy to Morgan), and Erin (mommy to Collin). Things are always so busy, but I thank each of you for being great friends and catching up when we can means so much to me. I'm so glad we always stay in touch!

To my IVF BBC girls!!!! I don't want to mention names in case you don't want me to, but I'm so grateful to have met each and every one of you (you know who you are). I'm sorry we had to meet through our struggles trying to conceive, but I'm so glad to have you in my life! So many of us have been blessed with our miracles, and for those of you who are still waiting to hold yours I am truly sorry and wish and pray for your babies to come to earth soon!!!!!

To my Scrapbooking BBC mamas and friends - Your support has been wonderful and I know I can always go to you girls for much needed good thoughts and prayers. And PIFing, of course!!!

To all of the mommies in the Magnan, Gollihur, and Braddock families that I haven't mentioned yet- Love you and I hope you all have a very a Happy Mother's Day this year and every year!

To Andrea, Bobby, Sheila, Nancy and all of the other fabulous ladies at SS#1 - I miss you so much and thank you for your continued friendship and support even though I'm no longer at school! Your friendship has been essential to my success both as a mom and a teacher, and I will treasure it always!!

Happy Mother's Day everyone!!!!

(And I'm sending a little sprinkle of baby dust to anyone reading this who is currently trying to conceive. I've been there - and I wish you luck and happiness!)

My gorgeous girls and handsome guys

At the end of March, we had the great fortune of having one of my old high school friends, who is now a photographer, come over to take pictures of the kids! Laura did an amazing job, with one of my best friends from high school, Michelle, as her assistant.

These are just some of the fabulous shots she got of our gorgeous girls and handsome guys! Thank you so much Laura!!

Brenna

Emily



Carter

Drew

These were all taken in our kitchen, by the way!!!! (Except for that last one of Drew outside.)

Thank you, thank you, thank you!

I just love all of the pictures!

On the Move

Clearly I need to do a better job of writing down when the babies are doing "firsts", because I would've guessed Brenna started rolling all over in late March. But I did remember that I wrote down when she first started rolling on the calendar and it was mid-January!

So, Brenna started rolling in January. By February, she was really rolling all over the place - from one side of the living room to the other. She started rocking on her knees, and she started crawling by the end of March. She is very fast, and now she's started pulling up on her knees in a sitting position and all the way up to standing this week!! She is quite a daredevil and has taken some small spills. But it doesn't stop her!

The first picture was taken after crawling over to one of her favorite things - the dirty laundry hamper. She pulled it right down and dumped it. She looks very proud, doesn't she?

And here she is after crawling over to her other favorite place - the bottom shelf of the changing table. We keep baskets of boy/girl clothing and the cloth diapers which we use for burp cloths. When she started climbing on to the shelf and sitting in there with the baskets, we decided to put one of the baby gates in front of it. So she can't go there anymore but she'll hang on the gate just hoping!

Here is a video of Brenna showing off her new moves!

(The squealing noises are coming from Brenna, the other noise is Carter in the jumperoo!)

My Big Helper

Saving Brenna from another fall at the changing table (she likes to crawl over and pull up onto her knees on the bottom shelf and sometimes loses her balance)
Naptime with all of his buddies
Drew sharing diamond blanket with Emily
Stud

Everyone always asks how Drew is doing being the big brother to three babies, and I always say the same thing. He's really doing great. He loves to entertain them and make them laugh and he's my biggest helper. He gets burp cloths, he brings me bibs, he gets them laughing when they're crying, and more. He's the best big brother.

Here's the cutest story behind the picture of Drew, Emily, and his beloved diamond blanket. Drew has had that blanket since he was a baby and he loves it. Up until just recently he couldn't sleep or nap without it and he liked to have it around most of the time. It is simply called "diamond blanket" and it's very special.

So, when Emily was laying on the floor on her Boppy he went over to her and said, "she must be cold down there". Then he went and covered her with his sacred diamond blanket. I was very moved by this gesture, and said, "Drew, that was so sweet of you to share your diamond blanket with Emily." And he layed down next to her and put his hand on her chest, patted her and said, "I love my Emily."

I said, "If she could talk, she would say she loves you too."

He said, "If she puts her hand on her head or on her mouth, that means she loves me."

Well, Emily very often puts her hand to her head or mouth and right on cue, she did it then.

And he said, "Awww, she did it! She loves me!"

And then, "Thank you for loving me, Emily."

I love that kid!!!

And I have to add, he also dusts, vacuums, mops, and sorts laundry too!!!

Catching Up

Biscuit is very protective of Emily . . .
He likes to be as close as possible! you can't tell because of the blanket, but his legs are actually on top of her leg.
I almost caught the whole smile!
Awake and alert

I haven't posted a medical update lately. So, here goes!



Emily has been having weekly calcium checks to keep the doctors posted on her calcium levels. She is still using the low calcium formula and extra water and her levels have been mostly in the normal range. There was one week where it was a bit high, and so we increased the free water and it came back down. It is hovering right around the high end of normal, so it continues to be checked weekly.



She is still being fed by NG tube, and the latest news on that front, is that she is only to be fed by the NG tube right now and for probably 2 more months at least. The NG tube is the feeding tube in her nose. We are currently waiting to set her up to have a G tube put in her stomach since her feeding difficulties are ongoing. We were certainly hoping she would start eating normally again after her calcium got back under control, but that, unfortunately is not the case.



The G tube will be surgically placed in her stomach and she will get fed through that tube the same way she gets fed through the nasal tube now. But all the doctors recommend it because it is more convenient, more difficult to pull out by accident (yay), and not irritating to the nose and throat. And since her doctors don't want her taking anything by mouth for awhile, it's the way to go. I was definitely reluctant to do it for awhile because it feels so permanent, but it can be removed later too when she does start to eat again by mouth.



Now - why is she not eating anything by mouth you ask? Well, her pediatrician and I noticed that she was breathing very noisily and sounded congested. So we made an appointment to see the ENT who used a scope to look down inside her throat and found that she has a narrowing of her epiglottis (or laryngomalacia). It is not so bad that she would need to have a corrective procedure right now, but the ENT wanted to have two follow up tests, an airway flouroscopy and a barium swallow study to rule out some other complications. She also wanted her to start on Zantac for some reflux.



I think the Zantac was a good idea, because without changing anything else, her noisy breathing and congestion had dramatically decreased and is almost gone!



We had the flouro and the swallow test, and it showed the laryngomalacia and some reflux, which is what the ENT saw. So nothing new there, which is good.



We also saw the feeding team at CHOP to discuss her feeding issues. The team included a doctor, nurse practitioner, speech therapist, occupational therapist, nutritionist, and a dietician. And if she had been more than nine months old, we would have seen a psychologist too! They also agreed that she should be NPO (not fed by mouth) for now. So I can let her try to suck on my finger or a pacifier dipped in water to keep her practicing her sucking. We'll see them again in two months or so.



The Occupational Therapist from the feeding team also suggested that we make an appointment with the seating clinic to get some adaptive equipment for Emily. It is getting increasingly harder to move Emily around and find baby gear that she can "sit" in comfortably due to her inability to hold her head up or sit. She has no trunk control so she slumps in anything that is not reclined, and she needs extra head support. Right now she lays on the Boppy pillow or in the rocker/chair. She may need an adaptive stroller, sitter, bath seat, or car seat. We will have that appointment at the very beginning of June.



She also recently got a molding helmet. One of our very first concerns for Emily was her head shape, so at a follow up appt in February, when the plastic surgeon noted her head shape had not improved since November, he suggested the helmet. She got it two weeks ago and has to wear it 23 hours a day. She gets to have it off for one hour while I wash her head/give her a bath. Hopefully we will see an improvement in a few months, but it has been difficult keeping it fitted well because she is always laying down.



Her spasms have been improving. She is currently on Topomax and Keppra, and is having 1-3 clusters of spasms each day that last about 3 minutes each. This is down from 4-6 clusters a day, with each cluster lasting 5-10 minutes each. We still have some room to increase her doses a bit and maybe we'll see even more improvement. Of course, we would love for her to be seizure free, but I'm not sure that that's possible. Her chromosome disorder complicates the effectiveness of the seizure medications.



She has also been having more alert/awake periods - sometimes for hours at a time. She can make eye contact occasionally, but not hold it or track for very long. She has started batting at the toys that hang down from her playgym and make the music play which is very exciting. It is mostly by accident that she hits it- but that is how she'll learn. She has been smiling more often too!





Oh, and she has a tooth!!! Just one, on her bottom left, and it's about half way through.

Pre-school Expectations

I'm going to be registering Drew for Pre-K next week!! So, it's only appropriate that I share this thought from Drew.

While I was pushing Drew on the swing in the backyard, Biscuit was bringing me his frisbee. He kept dropping it right in front of the moving swing! So, while I was trying to get Biscuit out of the way, Drew got impatient (go figure!!), and said "Mom, I need a push!"

The rest of the conversation went like this:

Mom: You know, Drew, you really have to work on pumping your legs to keep yourself going. When you go to school, your teacher is not going to be able to push everybody!

Drew: She will if she's an octopus!

Mom: (not able to hold back the laughter) Your teacher is not going to be an octopus!

Drew: Maaay - beeeeeee!!! (sing-songy)



Hmmm, Nemo's teacher was a sting ray after all, HA!

One Sweet Day

This song was recorded by Gee-off and his brothers, Mark and Evan, and was played at the end of their Mom's eulogy yesterday afternoon. Many were impressed with their rendition and so I thought we could share it here so those not in attendance could also enjoy it. For those who can't tell the difference between the brothers' voices, Gee-off sings first, then Evan, then Mark.

If you are anything like me, you should grab a tissue!

Click on this link to play:

http://mywebpages.comcast.net/mgollihur/toshare/OneSweetDay.mp3

If you right click on the above link, you can save the song as an mp3 on your computer.

In Loving Memory

Judith E. Gollihur
September 3, 1949 - April 2, 2008

Mother's Day Celebration - May 2007

Gee-off, Mark, and Evan, with Judy and Drew

This is Mom-Mom with Emily at Thanksgiving 2007 - one of the last times she was able to visit us at our house

On Wednesday, Gee-off's mom, Judy, lost her long and very brave battle with brain cancer. She will be greatly missed by her three sons, Mark, Geoffrey and Evan, and her daughters in-law Beki and Aimee. Drew was the lucky grandson to have had 4 years to know what an amazing Mom-Mom she was, and Carter, Brenna, and Emily will come to know her love through us.

She will be remembered forever in our hearts, and in the hearts of many whose lives she touched through her many years of teaching high school music, acting, singing, and directing musicals and the church choir.

She was generous, caring, thoughtful, and one fantastic cake decorator! She always made birthdays extra special.

We will miss you so very much.

Blog settings

Hi everyone!

It's so nice to know everyone is still checking in on us!

Don't forget to sign the guestbook (I moved it to the top) if you haven't yet.

And I changed some of the comment settings so your comments should come up almost right away. Before I was moderating them and somehow a few nice comments got lost!! Sorry, if your comment was one of them!

Happy Reading!
Aimee