Unfortunately, they came back quickly and frequently. We have increased her ACTH dose twice now and added Topamax as well, and she is having an average of 100 spasms a day over the last five days! [The date on this post is actually correct! :)] She is having less intense spasms, we are even calling them mini-spasms, because she doesn't cry after every one and physically it is just a small jerk. It's very frustrating and we are concerned. But there are other medications we can try and we can continue the ACTH at the high dose and hopefully see an improvement again over time. But each day the spasms continue, it's hard to be patient enough to find what will work for good.
Emily is so tough and only barely cries when she gets her injection each morning. We haven't seen a smile for a few days now, but she is continuing to make eye contact and is starting to follow objects and people with her eyes. What a good girl!!