Thursday, October 15, 2009

2009 Steps for Seizures - Team Emily

**We have received more than $700.00 so far! We'll be accepting donations until the day before the walk. Thank you again to everyone for your kindness and generosity!**

As many of you are aware, Emily began having seizures, known as infantile spasms, when she was just four months old. Her spasms were uncontrolled except for short periods of time with various medications for nearly fifteen months. During that time, Emily made progress, but it was very limited. Emily is now on the ketogenic diet, which is keeping her seizures under the best control they have ever been. She has had long periods of seizure freedom, going for weeks and even months without a spasm. Since starting the diet, she has also been progressing with her physical development, and is now rolling, holding her head up, smiling and laughing, and even eating some by mouth again at 2 years old.

But Emily’s battle with epilepsy is not over. She has had some breakthrough spasms on and off and will most likely suffer from some type of seizure for the rest of her life. After speaking with Clayton’s mother, we were encouraged to learn that the money raised by Clayton’s Hope (a 501 (c)3 non-profit organization) will be used towards funding a study at Children’s Hospital of Philadelphia as to how the adrenal gland plays a role in seizure management and control and, in turn, what medications will break the brain barrier and work on the adrenal gland's mechanisms.

We believe in the incredible doctors and researchers at Children’s Hospital and look forward to walking with Emily in the 2009 Steps for Seizures Walk on November 7, 2009, at Washington Lake Park.

We are hoping our friends and family both near and far are willing to help us raise money for the walk by donating to this cause. We also would like to invite anyone else who wants to walk with us on the 7th. If you are able, please let us know as soon as possible.

With our sincere thanks,
Geoff and Aimee Gollihur

You can email me for our address to send your donation.

Please make checks payable to: Clayton's Hope

Thursday, October 8, 2009


Drew is a bit picky when it comes to trying new foods, so we gave this 20 year old slogan and his love for the media attention a try. He did indeed enjoy his first Manwich.

Saturday, October 3, 2009

"One Short Day in the Emerald City"

On August 21st, Gee-off and I celebrated our 10th wedding anniversary! With the help of some friends who were kind enough to watch the kids all day and into the evening, we spent our special day in New York City and got to see Wicked! We had been trying to see the show for years but it never worked out. While waiting, I read the book and memorized the soundtrack. In fact, I listen to it so much in the car that even Drew frequently requests it. :)
We drove up early and had time to walk around and have some lunch. We shared a HUGE sandwich at a deli for lunch and then it was showtime! We got yelled at for taking this picture in the theater. Ooops.

Or maybe she yelled at us for this one. ;)

A nice family took our picture in front of the dragon clock.

Times Square

This our traditional "take our own picture" shot.

We're still smiling after 10 years! I'm so happy to have such a great hubby. Thanks for asking me to marry you so so long ago! I love you!