How's Emily?

Emily had her fasting test for hypoglycemia last week. She, of course, tolerated it like an angel. She's not one to fuss over being hungry, but still, she went 9 hours with no food! After 9 hours, her blood sugar had dropped just below 50, and her ketones increased to 2.6. At that point they took about 10 vials of blood for testing, stopped the fast, started her feeding again, and gave her some sugar water. We stayed overnight and were discharged on Thursday afternoon. We are continuing her 24 hour feeds for now and will get some results at her follow up appointment in November.

We are slowly increasing her Zonegran dose and trying B6 vitamin. She has responded tremendously to the Zonegran!! She has been having spasms about every other day now and the last few times were very mild, just a few small jerks. She has also been doing much more physically. The most amazing thing is that she is now rolling on to her side!! Both sides! She is also holding her head a bit when being supported in a sitting position. She is tolerating more time in her KidKart and rocker chair. She has also been looking/following objects more, especially using the light box. But she also enjoys watching her mobile and the pumpkin reflector necklace I hung on her crib.

This video is from last week and it just shows how much more she is vocalizing lately. While on the Vigabatrin, she stopped making sounds altogether so it is like music to hear these noises again!. Lots of smiles and laughing too! (You can hear Brenna a few times, but it's mostly Em!)