I thought for sure we'd be heading home Monday. Then I thought the same thing on Tuesday, and Wednesday, you get the picture.
So, it is Thursday night and until an hour ago (it is 10pm), I actually thought we might be able to go home tonight. That's not the case.
She has been doing great with her oxygen levels, but started having drops in her heart rate either Monday or Tuesday (the days are blending together). The doctors weren't sure why and wanted to consult with neurology to rule out seizures as a cause, and also to consult endocrinology to rule out a hormone issue.
So we had a long EEG today - no heart rate drops have been observed.
Then endocrine came and they don't think it's hormone related.
yesterday they started checking her blood sugars and twice they were very low. So then they were concerned about that. She had to skip a feed this afternoon, so they could do hourly blood sugar draws. And they put some cotton balls in her diaper to do some kind of urine test.
Well, her sugars were all OK, and here we still sit with the cotton balls still in her diaper (because "they need to be good and wet")!
We just can't get out of this place!!!!!! We'd better be leaving tomorrow. I've had enough.