Today marks a huge milestone for our little angel, 100 days seizure FREE!!!!!!!!!!!!!!!!!!!!!!!
This diet has been everything we'd hoped it would be, but I really never truly believed it would work!
Emily started the ketogenic diet in January, and after a rough start with very low blood sugars and getting a stomach bug during the diet admission week, she has been doing so well. Her seizures actually increased in the very beginning from 1 cluster a day to 2-3 cluisters per day, but in February they stopped! And haven't come back. :)
And because of this, she has been able to do so much more! She is rolling onto both sides, and rolling all the way over sometimes, making babbling/cooing noises, smiling so much and even laughing, sitting better and holding her head up better with help, lifting her head up and getting her body into a crunch from a laying position, eating a larger amount of baby food during her once daily oral feeding, and making eye contact and focusing on objects too. She still enjoys sucking/chewing on her fingers (especially her right hand) and has now found she can bite/chew on her shirt sleeve. She can even grasp a link and get in into her mouth to bite on for a short time. We are so proud!
Drew helped me make a special headband for Em for her big day. We punched out 100 hearts to decorate it and got everyone in the picture.
Hip hip hooray!!!