Tuesday, May 19, 2009

Celebrating 100 days!!!

Today marks a huge milestone for our little angel, 100 days seizure FREE!!!!!!!!!!!!!!!!!!!!!!!

This diet has been everything we'd hoped it would be, but I really never truly believed it would work!

Emily started the ketogenic diet in January, and after a rough start with very low blood sugars and getting a stomach bug during the diet admission week, she has been doing so well. Her seizures actually increased in the very beginning from 1 cluster a day to 2-3 cluisters per day, but in February they stopped! And haven't come back. :)

And because of this, she has been able to do so much more! She is rolling onto both sides, and rolling all the way over sometimes, making babbling/cooing noises, smiling so much and even laughing, sitting better and holding her head up better with help, lifting her head up and getting her body into a crunch from a laying position, eating a larger amount of baby food during her once daily oral feeding, and making eye contact and focusing on objects too. She still enjoys sucking/chewing on her fingers (especially her right hand) and has now found she can bite/chew on her shirt sleeve. She can even grasp a link and get in into her mouth to bite on for a short time. We are so proud!

Drew helped me make a special headband for Em for her big day. We punched out 100 hearts to decorate it and got everyone in the picture.
Hip hip hooray!!!


Anonymous said...

What a wonderful blessing, praise God! Will continue to pray for your family. May God be with you all.

Hope said...

Yay!! WTG Emily!!!! This is such great news!

Heather said...

Yay Emily!!! Awesome news!

Julia said...

wow!!! way to go!! what an incredible milestone!!! keep it up Emily!

Anonymous said...

OMG!!! Emily we are so proud of you!!! You look so beautiful in your crown and so alert! We love you all so much!!

Hugs and Kisses,

MeMe and PePe xoxo

Reagan Leigh said...

That's so wonderful!!! What a blessing! Keep them coming!

Sandy said...

That is such wonderful news! Go Emily!!!

Marie said...

Congratulations Emily! Way to go! We are so happy to hear of the great progress you are making.

Marie, Tom and Gracie Kilgore

jenyphrc said...

what great news!! Congrats Emily... and what a sweet hat!