Wednesday, September 24, 2008
At the clinic, the physical therapist recommended the KidKart, a wheelchair/stroller with a full head support system, side supports, etc., to keep her in a nicely supported upright position. She can only ride in the strollers we have now if she is almost completely reclined. Since she is already on her back so much, it's important to get her sitting when we can.
They also recommended a bath chair which is like a reclining lounge chair with a mesh lining to use in the bathtub. It is extremely difficult bathing her, so much so that I can only sponge bathe her because I can't support her in the tub and wash her at the same time. I've tried a few different ways, but none that really worked well.
Now the KidKart and bath chair had to be ordered and accepted by our insurance company so the process took almost 3 months. But, they were approved and we went to the clinic last week to get fitted and pick them up!
The KidKart is awesome and she can sit almost upright without the head strap for quite a while, 1-2 hours. We went to the circus last weekend and she sat in it the whole time and never fussed once. Plus, she was awake the whole time too!! She did her OT session sitting in it as well. Brenna, Carter, and Drew can play with her while she is in it too, and we don't have to worry about them climbing on her like when she's on the floor.
I can't even begin to tell you how happy I am to have the bath chair! I gave her a shower in it for the first time and she liked it and I could wash her thoroughly without any trouble. It sits up high on a base, so I was able to use the shower head for rinsing. I was so relieved I cried.
Here is Emily in her new ride
Playing with Drew and the spinner from her light box (for vision therapy)
At the circus
Saturday, September 20, 2008
Tuesday, September 16, 2008
One of the things Aimee and I want to do as the children get older is go camping. It was the vacation of choice for both of us as we grew up and we hope to continue that tradition with our little ones. We've been seriously looking since early June trying to find the right camper for our family. After we found it, Grandpop joined us to make sure there were no problems we might overlook. We knew we made the right decision when the seller told us it was garage kept and he would include many accessories. Although we'll likely need to wait until next season to camp in it, we know it will be a source of great memories for years to come.
The most important memory will be that this essentially was a gift from my Mom, and I know how happy she'd be to see this dream fulfilled.
"Hey Dad, Can we eat our cereal at this table?"
Friday, September 12, 2008
Nooooo, not yet . . .
Here we are during the first official Eagles game, in which, the Eagles pummeled their opposition and went on to victory. Don't ask me details, I can't even remember who they played or what the score was. Ha!
Thanks Uncle Evan for taking the picture and Michelle for the Eagles cheerleading outfits! (Carter doesn't fit in his outfit yet!)
Friday, September 5, 2008
On Wednesday, it was my turn to be on the other side; a Mom sending her first born son off to school for the first day. Oh my, only those of you who have had to do this yet, will truly understand how it feels - almost too difficult to put into words. Now Drew has been in daycare and home daycare full time while I was still working for 2 years. He's been going to camp for the past 3 summers. He even went to a half day pre school last year for a few months while I was pregnant with the babies. So, it should've been easier. And Drew is very independent and excited about school and the bus, not scared at all. So that really helped. But I still couldn't help but feel like he's all grown up, he's going to be in real school now until he's 18 years old. It's so huge!! I'm proud of him, I'm excited for him, I know he's going to learn wonderful things, his teacher seems fabulous, and he'll make lots of friends, maybe even some that will last a lifetime.
I still had a lump in my throat, and butterflies in my stomach on Wednesday morning. Amazingly I didn't cry, and I cry at everything, but deep down I knew he'd be just fine. (Of course I cried later when I checked his backpack and found a poem about the book, The Kissing Hand, and had to make him a cut out of my hand for his cubby. If you've never read this book, check it out!)
He came home (after a ridiculously long bus ride - a story for another time . . .), so happy, telling stories of his day and the lump and butterflies subsided, a little. I guess they'll never really go away completely as he goes through each new phase of his life, huh?
We love you Drewie Caboodles!!!!
(the bus came so early - 20 minutes early- we had to rush and I didn't get any other pictures! Wahhh!)
I promised I would post some pictures, so FINALLY, here they are:
We still have not gotten Emily's Kid Kart (adaptive stroller/wheelchair), so for now she uses this Chicco single stroller that was Drew's. Her Kart was approved so we should be hearing from them soon. She could ride in the double too, because each seat reclines independently.
Daddy and EmilyDrew and Uncle Joe buliding a sand castle
Carter and Brenna actually EATING sand. Brenna only got a little but Carter kept going back for more!!!!!!
Emily had to stay in the shade
Meme, Pepe, and Drew under the pavillion
The Spiderman popsicle from the Ice Cream Man (and my favorite picture of the day)!!!!
I'm so glad my family was here so we had lots of extra hands. We did take the babies in the water and they liked it. Brenna crawled down to the edge and started right into the water herself as soon as we put her down!