Monday, January 12, 2009

Checking in - Monday #1

We're all checked in! Emily is now snoozing away in the spankin' new hospital crib. The rails go all the way up like a little jail cell. :) We don't have to worry about that since she doesn't try to climb out.

So far, I've gone over Emily's feeding schedule and medications with 2 nurses, 2 doctors, and the keto nurse and dietician - each separately. I've taken a second trip to the car to bring up the rest of our bags, and also stopped to have lunch.

She did not get an IV yet, but that is possibly coming tonight. That is the only thing really happening tonight.

She will continue on her regular feeding schedule, and regular formula until 5 am. We will start the keto "goodness" at 8am tomorrow. Her feeding schedule with amounts and times is posted for the next 2 days. We will be measuring all of her new formula, water, and baby food to the gram. Everything is very exact.

I'll check in again before bedtime. :)


Reagan Leigh said...

I had no idea Emily was starting the Keto diet! Sorry, you probably have no idea who I am, but I've been following Emily for sometime as my daughter also has infantile spasms. Although the diet didn't work for Reagan, she LOVED the formula! I don't know if it was the fat in it or what, but she couldn't get enough of it and ate better while on the diet than ever before! (And didn't have any side effects or problems when first starting on try not to worry.) Take care and best of luck!!!

Shanna Grimes said...

Hope all goes well with the keto diet transition. That would be our next course of action if Kay's spasms return again, but so far she has been SF yet again, since Topamax dosage increase. Best wishes to you and your family. Hope little Emily does well and the keto gives you more control of the sz's.